Finding the Key to the Cure: Cinnie’s Story

Recently I joined a group of friends for lunch and learning. We want to add years of tomorrows for this darling little girl named Cinnie, as well as others who suffer from Cystic Fibrosis.

Little Cinnie’s mom Nicole is yet another dear friend whose life has been turned upside down by her daughter’s dreadful disease. With her family’s dedicated love and support, Cinnie is a joyful, blessed child who loves every day in spite of her chronic illness.

I’ve always known that beautiful Nicole would be the most amazing mom. She has been the go-to sitter for many of us over the years. It was magical to see her interaction with children. When Nicole met and married Josh, someone as special as she, we could hardly wait for them to become parents.

Thankfully for little Cinnie, they are the perfect parents we knew they would be, even with the challenges they face every day as they care for this gorgeous little girl who was diagnosed with CF soon after birth. Along with all the sleepless nights and duties required by all to be a good parent, Nicole and Josh must spend 3 hours every day performing Cinnie’s grueling airway clearance therapy. That time increases if she is sick. This courageous little family never complains and is always filled with hope for a way to control and cure this daunting disease.

30,000 Americans are living with Cystic Fibrosis. It’s a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe. Enormous progress has been made through research, adding years to the earlier prognosis of only living into early teens. Dede Sidbury, our local director for the CF Foundation, shared with us at lunch the accomplishments and great strides made because people care enough to donate and raise money.

 

 

My long time friend Jan Ellen Brown made us all smile as she talked about her now 29-year-old daughter who, like many others, is defying the odds because of progress brought about by research. My friend Carey Parker Deaton made it to 40. Incredible progress is being made, but there is a long way to go.

Donating and participating in special events to raise money for more research is the key to the cure. Another great friend of mine took part in an XTREME HIKE for the Cystic Fibrosis Foundation. Pam Hawthorne and a determined group against this disease hiked 30 miles of the Appalachian Trail IN A DAY last Saturday! They raised, by far, the largest amount of any hike for the cause in the country.

Working together against this enemy by taking part in fun events is such a great way to bring awareness and funds to the foundation, but you can help all on your own, too. If you woke up this morning wanting to make a difference in this world because you have been so blessed, then please consider helping little Cinnie and thousands of others who wake up every morning struggling just to breathe.

Click here to learn how more about special events and how to help beat Cystic Fibrosis.

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3 Comments
  1. Thank you Barbara for sharing Cinnie’s story. There are many other children and adults suffering from this disease. Hopefully with friends like you spreading the news people will be more aware of this dreadful disease.

    Thank you,
    Gail

  2. Fantastic article Barbara!! Thank you for amplifying the work of the Foundation and personalizing our fundraising efforts on behalf on Cinnie and all those who suffer from this horrible disease.

  3. My husband Carrick Bills was diagnosed with Idiopathic pulmonary fibrosis july 2014,am from NC and i want to inform the whole public of how me and my husband got cured from IPF,this disease started circulating all over his body, and he has taken treatment from his doctor,few weeks back i came on the internet to see if i will be able to get any information as to cure this disease, on my search i saw various testimony of someone who was healed from IPF by the great man called Dr ABUMERE and i told my husband about it and without any hesitation, i contacted his email: abumereherbalcentre@gmail.com i emailed him and and he guided me,i asked him for solutions and he started the remedies for the disease and indeed 2week after my husband started using the medicine, he was completely cured, honestly if not for doctor Abumere my husband wont be alive today so dear viewer why wasting your time living with this Idiopathic pulmonary fibrosis disease you can contact him now he is able to cure any kinds of disease .
    You can contact his Email and visit his website for futher informatiom.
    abumereherbalcentre@gmail.com
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