Recently I joined a group of friends for lunch and learning. We want to add years of tomorrows for this darling little girl named Cinnie, as well as others who suffer from Cystic Fibrosis.
Little Cinnie’s mom Nicole is yet another dear friend whose life has been turned upside down by her daughter’s dreadful disease. With her family’s dedicated love and support, Cinnie is a joyful, blessed child who loves every day in spite of her chronic illness.
I’ve always known that beautiful Nicole would be the most amazing mom. She has been the go-to sitter for many of us over the years. It was magical to see her interaction with children. When Nicole met and married Josh, someone as special as she, we could hardly wait for them to become parents.
Thankfully for little Cinnie, they are the perfect parents we knew they would be, even with the challenges they face every day as they care for this gorgeous little girl who was diagnosed with CF soon after birth. Along with all the sleepless nights and duties required by all to be a good parent, Nicole and Josh must spend 3 hours every day performing Cinnie’s grueling airway clearance therapy. That time increases if she is sick. This courageous little family never complains and is always filled with hope for a way to control and cure this daunting disease.
30,000 Americans are living with Cystic Fibrosis. It’s a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe. Enormous progress has been made through research, adding years to the earlier prognosis of only living into early teens. Dede Sidbury, our local director for the CF Foundation, shared with us at lunch the accomplishments and great strides made because people care enough to donate and raise money.
My long time friend Jan Ellen Brown made us all smile as she talked about her now 29-year-old daughter who, like many others, is defying the odds because of progress brought about by research. My friend Carey Parker Deaton made it to 40. Incredible progress is being made, but there is a long way to go.
Donating and participating in special events to raise money for more research is the key to the cure. Another great friend of mine took part in an XTREME HIKE for the Cystic Fibrosis Foundation. Pam Hawthorne and a determined group against this disease hiked 30 miles of the Appalachian Trail IN A DAY last Saturday! They raised, by far, the largest amount of any hike for the cause in the country.
Working together against this enemy by taking part in fun events is such a great way to bring awareness and funds to the foundation, but you can help all on your own, too. If you woke up this morning wanting to make a difference in this world because you have been so blessed, then please consider helping little Cinnie and thousands of others who wake up every morning struggling just to breathe.
Tell Me: What is a cause you are passionate about?